We need patients and parents to input into the development of the first European Respiratory Society (ERS) international guideline for the management of bronchiectasis in children.
This guideline will aim to raise awareness and encourage an evidence-based approach to the management of bronchiectasis in children and will complement the guideline for adults with bronchiectasis that was published in 2017.
This guideline will cover bronchiectasis that is not related to cystic fibrosis.
The guideline will be developed by a working group (called a Task Force) made up of healthcare professionals and parents/patients.
We are looking for people diagnosed with bronchiectasis that have no other diagnosed condition (e.g. cystic fibrosis). People with a diagnosis of bronchiectasis and primary ciliary dyskinesia (PCD) are eligible to be involved.
Any costs for getting involved in the parent/patient advisory group, such as telephone calls, travel and accommodation costs will be covered in line with our expenses policy. This is a voluntary role, and we are unable to pay for your time.
If you would like to find out more, please email Jeanette Boyd.
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