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Do you have experience of lung cancer? Join our new patient advisory group

Last Update 06/04/2021

ELF and ERS are launching a number of research and awareness activities on lung cancer, informed by people with experience of the condition, and with input from medical experts.


The European Lung Foundation (ELF) and The European Respiratory Society (ERS) are launching a number of research and awareness activities on lung cancer, informed by people with experience of the condition, and with input from medical experts.

We are inviting people with lung cancer, and their partners or family members, from across Europe, to influence the development of these projects through a patient advisory group. Would you or someone you know like to get involved?

We are looking for people with lung cancer, people who have survived lung cancer, family members/carers of people with lung cancer, and lung cancer patient organisation representatives.
Your role would be to work together with the other members of the group to provide the patient and carer perspective in the following ways:

  • Steering the development of patient-led guidance for healthcare professionals and for individuals living with lung cancer, to provide information and recommendations on what matters most to people affected by lung cancer across Europe.
  • Helping to develop a survey to gain insight into the experiences and priorities of people living with lung cancer and their family members/carers.
  • Informing new European guidelines on lung cancer management.
  • Working with a new pan-European network linking patient representatives and healthcare professionals at the national and European level.

We aim to recruit a small group of people so that there will always be more than one person to represent the group in the different projects and at meetings. This will mean that there is not too much work for any one person, and that there are always other members of the group who can take part if you need to take a break due to your health, work or other commitments. You will be invited to take part in teleconferences, workshops, surveys and to contribute your experience and ideas by email.

If you would like to be part of this advisory group, or would like some more information email Jeanette Boyd

 

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