Our core content on Lung conditions and related factsheets has been translated to a number of other languages.
For more languages explore all available Factsheet translations.
Volunteer as a translator or learn how to translate using Chrome, Firefox or Edge browsers.
Our core content on Lung conditions and related factsheets has been translated to a number of other languages by our volunteer team.
For more languages explore all available Factsheet translations.
Volunteer as a translator or learn how to translate using Chrome, Firefox or Edge browsers.
A paper produced by ELF, patient organisations and healthcare professionals that highlights priorities for the diagnosis, treatment and care of people with lymphangioleiomyomatosis (LAM) has been published in ERJ Open Research.
Among the top priorities were: improving diagnosis of LAM, making drugs that treat the condition available across the EU, as well as giving people with the condition access to specialist LAM centres for treatment and support.
LAM is a rare lung condition almost exclusively affecting women of childbearing age, which currently has no cure. The condition causes cysts to develop in the lungs and symptoms include breathlessness. Some people with LAM also develop tumours in their kidneys.
The paper is an outcome of the ELF patient priorities LAM project, which is led by people affected by the condition.
To find out the priorities, ELF asked the views of people who have LAM, caregivers and healthcare professionals in an online survey, followed by a workshop at the European Respiratory Society International Congress in Munich in 2014.
Picture: The LAM workshop at the European Respiratory Society International Congress in Munich in 2014.
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.
ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
No description