Lots of activity has been taking place around the European Patient Ambassador Programme (EPAP) in recent months, with more coming up.
Two patient advisory group (PAG) members, Amanda Roberts and Betty Frankemölle, presented a workshop on the benefits of EPAP at the ELF patient organisation networking day at the ERS International Congress in London in September.
Betty is already preparing for her next congress attendance – she will be presenting the patients’ view at the International Chronic Fatigue Syndrome Congress in Amsterdam at the end of November.
The finishing touches are currently being put on the Italian version of EPAP, which should be available fairly soon.
Patient ambassador, Claudie Baleydier, who is also a European Patients Academy on Therapeutic Innovation (EUPATI) trainee in France, is currently proofreading the complete translation of the programme into French.
The PAG is already forging ahead with collating materials for the first ever EPAP newsletter, which will hopefully be published this winter.
Preparations for another first are underway too – a face to face meeting for the members of the PAG in spring.
If you want to gain the knowledge and skills needed for effective patient involvement join us and register for the programme. It is free, flexible and easy to follow. 635 people from all over Europe have already registered.
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.