A new online resource for people with rare diseases has launched to help you find reliable information and answers to your questions. EXABO (the EXpert Online Advisory Board) is coordinated by ERN-LUNG, the network for rare respiratory diseases.
You can ask a question in English or German by visiting the EXABO website. A medical expert in Europe who is specialised and experienced in your disease will respond.
The medical experts are looking forward to receiving many questions about different rare lung diseases. So whether you are concerned about the side effects of a new drug, or want advice about where to find a specialist centre near you, the EXABO experts could help you.
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.
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