ELF and the European LAM Federation will be holding a patient priority setting workshop at ERS Congress this year.
It will be an opportunity for people affected by lymphangioleiomyomatosis (LAM) to come together with LAM experts, researchers and industry to identify their shared priorities and learn from one another. The priorities identified during the workshop will then be presented in a symposium as part of the scientific programme of the Congress.
We invite people with experience of LAM to share their views and priorities via our online survey.
Complete the survey and we will share your views during the workshop. The survey is available in 7 languages:
Visit the LAM RareConnect page to find out more about the event, or read the interview with Iris Bassi of LAM Europe Federation.
Learn about the conditions that can affect our lungs and access our lung condition specific information.Read more
Learn more about life with a lung condition and things you can do to improve your quality of life.Read more
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.Read more
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.