A new group that aims to push rare diseases as an international health priority met for the first time in Madrid, Spain last week (28 May, 2015).
The group, named Rare Diseases International, was set up by the European Organisation for Rare Diseases (EURORDIS) and brings together 60 patient representatives from 30 different countries.
Rare diseases are still widely misunderstood by major healthcare organisations, and many rare conditions still do not have approved treatments.
Rare Diseases International is keen to raise awareness of rare diseases globally, particularly among the institutions that fund research, and to encourage pharmaceutical companies to do more to help find treatments for them.
Read more about Rare Diseases International.
Learn about the conditions that can affect our lungs and access our lung condition specific information.Read more
Learn more about life with a lung condition and things you can do to improve your quality of life.Read more
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.Read more
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.