New patient priorities website for parents and caregivers of children with interstitial lung disease

We are delighted to launch a new website that provides information about children’s interstitial lung disease (chILD) for parents and caregivers of infants, children and teenagers living with the condition across Europe.

The website was produced as part of our patient priorities projects. We developed it with the support of parents and caregivers of infants, children and teenagers living with these very rare lung conditions and healthcare experts in the field who are members of the ChildEU Clinical Research Collaboration (CRC) which promotes awareness and research into chILD. Our thanks to everyone involved for their sharing their experiences and expertise.

We encourage you to visit the website and find out more about diagnosis, treatment and the experiences of parents and their children, and pass it on through your networks to help spread awareness.

We will add more information to the website in a range of languages over the next few months and look forward to receiving your feedback.

Visit the chILD patient priorities website. 

Visit the patient priorities homepage to see all four websites on bronchiectasis,LAM, lung cancer and chILD.