ELF is supporting healthcare professionals and patient partners to put together an application for funding for a European Reference Network on rare lung conditions (ERN-LUNG).
The network will join together medical experts and specialist centres across Europe to share knowledge and resources for patient-centred research and care of rare and complex lung conditions.
ERN-LUNG wants to ensure that patients are at the heart of the network and that patient views about it are heard via:
An online survey for people with rare lung conditions and their caregivers – to find out what patients and caregivers think the network’s aims should be and what services all people with rare lung conditions should be able to access. The survey takes 10-15 minutes to complete, and is open until Friday 29 April.
Complete the online survey or share the link with anyone you know who might be interested.
Learn about the conditions that can affect our lungs and access our lung condition specific information.Read more
Learn more about life with a lung condition and things you can do to improve your quality of life.Read more
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.Read more
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