Patient organisation round-up: February 2019

Patient organisations have been starting new projects for 2019 to continue their support for patients across Europe.

Picture: Lovexair Foundation at the Go Health Awards 2019

In the last month, patient organisations have been busy starting new projects and activities for 2019 to continue to develop their support for people living with lung conditions. Read below for a summary of the recent work carried out by a selection of organisations.

Lovexair gets recognised in the Go Health Awards and carries out workshops in primary school

The Lovexair Foundation’s involvement in the “Respirar es vida” (Breathing is life) campaign was recently recognised at the second edition of the Ibero-American Go Health Awards in Barcelona. The campaign aims to promote healthy, active lifestyles for patients with asthma and COPD, as well as educate patients on the use of inhalers and self-care techniques.

Visit the campaign website.

As part of the Lovexair Foundation’s HappyAir programme, the “Airman” superhero visited a primary school in Madrid for the third year running. Over 100 children aged 5 took part in workshops to learn about protecting their lungs from air pollution, tobacco smoke, viruses and bacteria, and to make sure they value the importance of breathing clean air.

Visit HappyAir.

Aspergillosis Trust launches selfie campaign for World Aspergillosis Day

Leading up to the second World Aspergillosis Day, held on 1 February 2019, the Aspergillosis Trust has been working hard to raise awareness of Aspergillosis. This year’s theme was to encourage both the public and healthcare professionals to “think fungus”, aiming to get patients diagnosed correctly and treated earlier.

The organisation’s selfie campaign aims to bring people together to express their support for the work carried out by the Aspergillosis Trust. Thanks to those taking part in the campaign and sharing on social media, the Aspergillosis Trust can continue to raise awareness of aspergillosis and call for improved outcomes for patients.

Read patients’ stories.

Fondazione Ricerca Fibrosi Cistica (FFC) calls for research project submissions

The Italian Cystic Fibrosis Research Foundation (FFC) is calling for applicants to submit innovative research projects on cystic fibrosis that link to the organisation’s priorities on finding new treatment for cystic fibrosis. The final deadline is 15 February 2019.

Find out more.

INCURE publishes first scientific journal

The Communicable Diseases Intensive Care Association (INCURE), together with the National Institute of Phthisiology and Pulmonology, have recently published the first issue of their scientific journal, Infusion & Chemotherapy.

View English abstract.

PHA Europe publishes winter edition of Mariposa

The European Pulmonary Hypertension Association has published the winter 2018 edition of their journal, Mariposa. It gives an insight into last year’s major achievements, current projects and initiatives, and upcoming activities of member associations.

View and download the journal article.

WALCE produces guide to help patients of small cell lung cancer

Women Against Lung Cancer in Europe (WALCE) have recently created a booklet about small cell lung cancer (SCLC) and the process from diagnosis to treatment. Produced in Italian, the guide aims to inform and advise patients and caregivers on specific types of SCLC, as there is currently a shortage of material to educate and help people affected by this condition, especially in Italian. The guide answers the most common questions linked to SCLC.

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