Patient organisation round-up, June 2016

Read below for a snapshot of what members of our patient organisation network have been up to during the last month.

European Federation of Allergy and Airways Diseases Patients’ Association (EFA) networking day

On 24 May EFA ran a networking day with a full range of patient-driven research sessions to present their ongoing activities, including the Asthma Adolescence project. Other sessions concentrated on EFA’s plan to advocate for more political commitment on chronic lung conditions at EU level.

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Breathe Easy group organises ‘Singing for fun’ sessions

The Westminster Breathe Easy group of the British Lung Foundation organised a number of events across London throughout June. This includes advice sessions on lung health, a health watch forum, a research open day at one of the local hospitals, and a singing taster session, which aimed to get people interested in singing for fun and to improve their wellbeing.

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10th European Day of Patients’ Rights takes place in Brussels

The Active Citizens’ Network reported on the 10th European Day of Patients’ Rights, which took place on 4 May in Brussels. 25 patient organisations took part alongside representatives of the European Parliament and international stakeholders. The central theme was reducing waste and inefficiency in healthcare systems and increasing the quality of patient care through collaboration.

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European Disability Forum (EDF) marks 10th anniversary of regulation on air passengers’ rights with disabilities

EDF, together with the Disability Federation of Ireland and Dublin Airport, organised an event at the airport to mark this important day in the history of disability rights. The legislation has facilitated air travel for millions of persons with disabilities in Europe and has given clear guidance to airports on what services should be provided and how.

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