Picture: Sarcoidosis patient advisory group members at ERS Congress, Paris 2018
A joint letter about the treatment priorities for people living with sarcoidosis, written by the ELF sarcoidosis patient advisory group and healthcare professionals working in the field, has been published in ERJ Open Research.
In early 2018, we launched an international survey aimed at people with sarcoidosis, asking them to rate the importance of different treatment outcomes to them.
1,842 people responded, with ‘quality of life’ and ‘functionality’ ranking as the two most highly-rated outcomes for treatment and care.
The letter highlights these results and also calls for:
Thank you to everyone who contributed their views to the survey.
Learn about the conditions that can affect our lungs and access our lung condition specific information.Read more
Learn more about life with a lung condition and things you can do to improve your quality of life.Read more
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.Read more
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.