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Results of our 2013 patient organisation survey

Last Update 06/04/2021

A new ELF report reveals which diseases are best represented and how patient organisations are developing


In 2011 and 2013, the European Lung Foundation (ELF) sent out a survey to respiratory patient organisations across Europe, asking which lung diseases they represent and what activities they are engaged in.

The new report provides a comparison between both survey results to look at how patient organisations are developing in response to healthcare and patient needs.

ELF was delighted that over 150 organisations responded, providing a detailed insight into activity across Europe. All organisations that responded are now included in the ELF European Patient organisation network, which can be searched by disease and by country.

We hope that the ELF European patient organisation network will help us all to be more aware of the activities of other organisations and to find ways to work together for the benefit of people with lung diseases throughout Europe. 

Read the full report

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