Our core content on Lung conditions and related factsheets has been translated to a number of other languages.
For more languages explore all available Factsheet translations.
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Our core content on Lung conditions and related factsheets has been translated to a number of other languages by our volunteer team.
For more languages explore all available Factsheet translations.
Volunteer as a translator or learn how to translate using Chrome, Firefox or Edge browsers.
Have you been tested for Primary Ciliary Dyskinesia (PCD)?
Share your experiences and help shape new European guidelines on PCD diagnosis.
People who have been tested for PCD (or parents) are invited to complete a short survey to highlight issues that they consider important.
It can be difficult to diagnose PCD and many people have bad, as well as good experiences leading to a positive or negative diagnosis. We would like to learn more about peoples’ experience of PCD diagnosis so that we can improve how people with PCD are diagnosed. We are interested in opinions from patients who were found not to have PCD as well as those with the disease.
The European Respiratory Society (ERS) has funded a group of experts and patients to form guidelines for the diagnosis of patients with primary ciliary dyskinesia (PCD). To include the opinions of patients from across Europe in this guideline, we are asking people who have been tested for PCD (or parents) to fill our short survey.
The survey is available online in 8 languages until 2 November:
If you would like to receive updates or would be willing to talk to a researcher to provide more in-depth insight into your experiences, you can enter your email address at the end of the survey.
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.
ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79
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