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Our core content on Lung conditions and related factsheets has been translated to a number of other languages by our volunteer team.
For more languages explore all available Factsheet translations.
Volunteer as a translator or learn how to translate using Chrome, Firefox or Edge browsers.
From 7–8 March, 2018, we took part in the ERN-LUNG general meeting in Frankfurt, Germany.
ERN-LUNG aims to be the central hub for rare lung conditions, and the means through which the EU will fund and drive work in this area in the coming years. ELF’s role is to support patient involvement within the network.
The aim of the meeting was for all core disease and functional committee leads to update the whole network on progress in year 1 and to plan for Year 2. The network members were in attendance, as well as Rare Diseases Europe (EURORDIS), the European Respiratory Society and 11 enthusiastic patient representatives covering a range of rare lung conditions, including bronchiectasis, idiopathic pulmonary fibrosis, pulmonary hypertension, mesothelioma, sarcoidosis and primary ciliary dyskinesia.
Developments in year one include an online system for experts to consultant with each other on difficult cases, setting up an infrastructure for patients to be able to submit questions to experts and funding for a registry warehouse for bronchiectasis, cystic fibrosis and pulmonary hypertension. Over the next year, the aims are to further strengthen the network and its collaborations, and to work on the priorities of research, registries, training and cross-border care.
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ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79
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