We are asking people with Alpha-1 Antitrypsin Deficiency (AATD) and their families and friends to tell us about the challenges of care, treatment and living with AATD.
This survey has been developed as part of the work led by EARCO (European Alpha-1 Research Collaboration), a Clinical Research Collaboration of the European Respiratory Society that helps experts in Alpha-1 come together to investigate this disease. Your survey answers will influence what research is done by research centres in the future.
The survey is open to people diagnosed with AATD as well as parents, relatives and caregivers of people with AATD. It is available to take in English, Dutch, French, German, Italian, Polish, Portuguese, Serbian and Spanish. The survey will be open until 8 December 2019.
As AATD is a rare disease, please help us to share this survey as widely as possible. You can share the survey on Twitter, or by emailing a link to this page to your contacts.
Read our factsheet on Alpha-1
Visit the EARCO website
Explore our information about lung health and conditions, smoking, exercise and more.Read more
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.Read more
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.