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Patient resources

Access resources from the IMPORTANCE project, aimed at patients and their family or carers.

Patient advisory group

The patient members of our advisory group inform us about their experiences using home respiratory support. Do you use home respiratory support (CPAP or ventilation) and are you interested in joining our advisory group? Please contact us for more information and to join our group.

Contact us

Patient survey

This survey invites patients to share their experiences with breathing support devices—referred to broadly as “ventilators”—including CPAP, BiPAP, noninvasive ventilation and other therapies used for breathing or sleep apnoea. The anonymous online questionnaire takes around 15–20 minutes to complete. Participation is voluntary, and you can withdraw at any time before submitting your answers. Your feedback will help improve care for people using these therapies.

The survey is open until 31 October 2025 and is available in 21 languages, including English, Chinese, French, German, Spanish and Portuguese.

Learn more and take the survey

Patient resources

Lay guideline on home mechanical ventilation

The European Respiratory Society (ERS) has published a clinical guidelines for the use of telemedicine in home mechanical ventilation in people with chronic respiratory failure. The European Lung Foundation have produced a lay version of this guideline for people using, or considering using, home mechanical ventilation, their family or carers.

The content of this CRC website is managed by CRC members and can only be used to communicate on activities directly linked with CRC. All scientific content and communication contained on the CRC website do not reflect the position of the European Respiratory Society/European Lung Foundation.