SHARP CRC meeting at ERS Congress – Vienna 2024
What an incredible year for the SHARP CRC!
This year, SHARP members came together at the ERS Congress in Vienna to reflect on a year full of inspiring collaboration. We have achieved so much together! From a range of impactful projects with publications on the horizon, to the launch of the SHARP Workshop for Rising Stars, it has been a period of growth and success. Our National Lead Forum delivered high-level discussions and results that will drive improvements in patient care, while the SHARP Federated Analysis Platform (FAP) and the SHARP Central Registry have expanded and advanced. And the momentum does not stop here—with several exciting new projects already in the pipeline, we are set for another remarkable year ahead!
We are thrilled by these achievements and even more excited for what is to come. Let’s continue this amazing journey together!
Publication to come (submission before end of 2024)
- From Case Series of Rare Asthma:
“Newly diagnosed eosinophilic granulomatosis with polyangiitis in patients on biologics for severe asthma- a multi-centre case series”
- From Health Economics project:
“Economic impact of steroid-induced comorbidities in severe asthma: a SHARP CRC simulation”
- From Burden of Multimorbidity project:
“Multimorbidity phenotypes offer new understanding in Severe Asthma: Findings from SHARP”
“Comorbidities & Multimorbidity in Severe Asthma: Burden, Recognition, Resources & Needs”
- From Descriptive of SHARP SA population project:
“Analysis of the SHARP CRC patient population reveals a large heterogeneity among European patients with severe asthma”
Benefits from the First face-to-face Workshop for Rising Stars:
- Inspiration and discussion of research ideas
- Networking with key opinion leaders and other rising stars
- Feedback on SHARP projects
- Enhanced communication with collaborators
- Further insights into SHARP
SHARP National Leads Forum:
The National Leads of the 28 SHARP-federated European countries committed altogether, convened at the ERS congress in Vienna, discussing the Strengths, Weaknesses, Opportunities and Threats (SWOT) of clinical centres throughout Europe, to improve the care of people living with severe asthma. Read more about this forum.
Take home message from the clinical care and data collection part of the survey:
- FAP registries unique, powerful, but needs to improve patient centeredness (PROs)
- Need for harmonisation => development of a SHARP Protocol
SHARP FAP and SHARP Central registry:
- Increased number of countries in SHARP Central and of connected countries with the FAP.
- SHARP FAP online catalogue: Beta version available and a working group in progress to review and develop it
- Improvement of the governance for better coordination among technical teams and smoother analysis turnaround
- Towards OMOP (Observational Medical Outcomes Partnership) by design for data collection and harmonisation.
Six upcoming projects on key topics affecting the severe asthma community
- Remission and lung function
- Aspergillus in Severe Asthma
- Elderly patients in Severe Asthma
- Smoking habits in Severe Asthma patients
- Patients’ Experience on Biologics
- BMI and Obesity in Severe asthma
