How to develop a person-centred lung cancer screening programme
From the outset, patient advocates Anne-Marie Baird and Seamus Cotter were embedded in the development of Ireland’s Lung Health Check programme.
They contributed to trial design, engagement strategies and communication materials, with their personal experiences with lung cancer helping ground decisions in real-world considerations. Ireland’s approach demonstrates that successful screening depends on patient advocates being involved throughout the design process, not just consulted occasionally.
Watch as Anne-Marie explains the importance and benefits of including patient perspectives from the outset:
The value of patient advocate input
Patient advocate input is vital in designing a lung health check programme because it ensures that the process reflects real participant needs, concerns, and lived experiences. Involving patient advocates from the outset helps to ensure clear communication, accessible processes and culturally sensitive approaches that improve trust, uptake and equity. Early engagement also helps identify potential barriers such as fear, stigma, or practical access issues, allowing programmes to be more acceptable, effective and sustainable.
Key principles of public engagement
When designing a programme, it is important to:
- Keep materials digestible and accessible. Avoid dense paragraphs that overwhelm readers. Visual elements should feel welcoming rather than clinical, and materials must make clear that questions are welcome.
- Use plain language. Explain technical terms where necessary and test materials with people similar to those who will receive them.
- Tailor approaches to local communities. Different regions may need different materials or communication channels. Some communities respond better to social media, others to radio or printed materials through trusted venues.
- Partner with local champions. Work with representatives who understand specific community concerns and communication preferences. They can help navigate different communities and build trust, which can be particularly important if eligible participants have concerns or reservations aboutsmoking cessation support, health and medical services.
- Provide multiple ways to get questions answered. Make it easy for people to seek clarification and express concerns through various channels, including both online and in person. Community engagement events also provide opportunities for people to ask questions and discuss things they feel unsure about, so it is important to create judgement-free and welcoming spaces.
When these elements come together, programmes stand a better chance of reaching people who would benefit most from early detection whilst creating an experience that feels supportive and genuinely focused on well-being.
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