The “Co-designing a Core Outcome Set for and with patients with Idiopathic Pulmonary Fibrosis” (COCOS-IPF) project aims to develop a Core Outcome Set (COS) and their corresponding measures for IPF care in Europe. The project will involve a transnational collaboration with professionals and patients, a sound methodological underpinning of the work planned, and by paying attention to geographical, socio-economic and healthcare system diversity within Europe, we will succeed to create a set of outcomes that patients and healthcare professionals value the most within IPF care.

Lungs Europe are the joint leaders of Work Package 5 and involved in multifaceted dissemination.

The project is funded by the European Joint Programme on Rare Diseases . The project will take 3 years to complete and started on October 1, 2022.