Patient representatives needed for two new Task Forces

If you have been affected by Pulmonary Alveolar Proteinosis (PAP) and/or pneumonia, you could help guide research by being part of a new Task Force.

A Task Force is a group of lung health experts working together to produce guidance on how to diagnose, treat, and manage different lung conditions and symptoms. Two new Task Forces are looking for patients to share their experiences and ensure that the guidance takes account of what is most important to patients. 

  • A Task Force is developing guidelines on the diagnosis and treatment of Pulmonary Alveolar Proteinosis (PAP). They are seeking someone with experience of the disease to join them. 
  • A Task Force is developing a core outcome set for pneumonia, which will enable health professionals to better compare the effectiveness of different treatments. They are looking for someone who has been in hospital with pneumonia in the last year to join them. They would prefer someone whose pneumonia was not caused by COVID-19 infection. 

For more information, or if you would like to get involved, please contact Clare: