Publications

http://breathe.ersjournals.com/content/11/4/249

Patient involvement

“Patients Included” in the European Respiratory Society International Congress

Authors: Smyth D, Powell P, Masefield S.

Published: 2015

https://breathe.ersjournals.com/content/7/2/118

Lung Function Testing

747,000 litres air blown to help raise awareness of spirometry

Authors: Siafakas N, Fletcher M, Carlsen KH

Published: 2010

https://ersguide.org/images/articles/2017-2018/RED-006-2017.pdf

Lung Cancer

A Patient’s Journey Through Lung Cancer – just hear me out

Author: Tom Simpson

Published: 2017

https://breathe.ersjournals.com/content/16/2/200116

Primary ciliary dyskinesia (PCD)

A process of years: coming to terms with primary ciliary dyskinesia

Authors: Lucy Bolt, Scarlett Bolt

Published: 2020

http://www.imi.europa.eu/sites/default/files/archive/uploads/PatientWorkshop2016/UBIOPRED_guide_2016.pdf

Patient involvement

A short guide to successful patient involvement in EU-funded research: Lessons learnt from the U-BIOPRED project

Author: Powell P

Published: 2016

https://pubmed.ncbi.nlm.nih.gov/26623686/

Pulmonary rehabilitation

An Official American Thoracic Society/European Respiratory Society Policy Statement: Enhancing Implementation, Use, and Delivery of Pulmonary Rehabilitation

Authors: Rochester CL, Vogiatzis I, Holland AE, Lareau SC, Marciniuk DD, Puhan MA, Spruit MA, Masefield S, Casaburi R, Clini EM, Crouch R, Garcia-Aymerich J, Garvey C, Goldstein RS, Hill K, Morgan M, Nici L, Pitta F, Ries AL, Singh SJ, Troosters T, Wijkstra PJ, Yawn BP, ZuWallack RL.

Published: 2015

https://breathe.ersjournals.com/content/9/5/333

Patient involvement

Are patients shaping healthcare across Europe?

Author: Fletcher M

Published: 2013

https://erj.ersjournals.com/content/49/5/1602294

Asthma

Asthma research in Europe: a transformative agenda for innovation and competitiveness

Authors: Papadopoulos NG, Androutsopoulou A, Akdis C, Dahlén SE, Djukanovic R, Edwards J, L Garcia-Marcos, Johnston SL, Kupczyk M, Martin TR, Myles D, Palkonen S, Powell P, Riley J, Walker S

Published: 2017

https://openres.ersjournals.com/content/3/2/00015-2017

Home ventilation

Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS-ELF survey

Authors: Masefield S, Vitacca M, Dreher M, Kampelmacher M, Escarrabil J, Paneroni M, Powell P, Ambrosino N.

Published: 2017

https://breathe.ersjournals.com/content/15/4/277

Asthma

Biomarker development in asthma from a patient’s perspective

Author: Dominique Hamerlijnck

Published: 2019

https://breathe.ersjournals.com/content/8/2/91.article-info

Patient involvement

Bringing the patient voice to the ERS Annual Congress

Author: Fletcher M.

Published: 2011

Asthma

Building the investment case for asthma R&D: the European Asthma Research and Innovation Partnership argument

Authors: Walker S, Akdis C, Dahlén S-E, Djukanovic R, Edwards J, Garcia-Marcos L, Johnston S, Kupczyk M, Martin T, Myles D, Palkonen S, Papadopoulos N, Powell P, Riley J

Published: 2016

Home ventilation

Calling for comfort – the unmet needs of European home ventilation users

Authors: Masefield S, Powell P, Vitacca M, Ambrosino N.

Published: 2016

Pulmonary rehabilitation

Cardiopulmonary exercise testing (CPET) patient survey

Authors: J Boyd, P. Powell, I. Vogiatzis, D. Kontopodis, H. Hebestreit.

Published: 2018

https://erj.ersjournals.com/content/53/5/1900787

Chronic Cough

Clinical Research Collaboration; New understanding in the treatment of cough (NEUROCOUGH) ERS Clinical Research Collaboration: improving care and treatment for patients with cough

Authors: Lorcan McGarvey, Lieven Dupont, Surinder Birring, Jeanette Boyd, Kian Fan Chung, Marta Dabrowska, Christian Domingo, Giovanni Fontana, Laurent Guilleminault, Peter Kardos, Eva Millqvist, Alyn H. Morice, Jaclyn A. Smith, Jan Willem van den Berg, Charlotte Van de Kerkhove on behalf of the NEUROCOUGH

Published: 2019

https://openres.ersjournals.com/content/5/2/00055-2019

IPF

Communication difficulties reported by patients diagnosed with idiopathic pulmonary fibrosis and their carers: a European focus group study

Authors: Masefield S, Cassidy N, Ross D, Powell P, Wells A.

Published: 2019

https://pubmed.ncbi.nlm.nih.gov/29326319/

Bronchiectasis

Cross-infection risk in patients with bronchiectasis: a position statement from the European Bronchiectasis Network (EMBARC), EMBARC/ELF patient advisory group and European Reference Network (ERN-Lung) Bronchiectasis Network

Authors: Chalmers J, Ringshausen F, Harris B, Elborn S, Posthumus A, Haworth C, Pilkington N, Polverino E, Ruddy T, Aliberti S, Goeminne P, Winstanley C, De Soyza A.

Published: 2018

EPAP

Development and evaluation of a free online course on core skills for patient involvement in healthcare

Author: Masefield S.

Published: 2014

Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.

Name
First Last
Email*
Name
This field is for validation purposes and should be left unchanged.

Lung conditions

Factsheets

Keeping lungs healthy

COVID-19

Air travel advice

Projects and campaigns

Task forces and clinical research collaborations

Meet the team

Partners and patient organisations

Your experiences

Awards

How we work together

Opportunities

Take part in a survey

Events

Donate to ELF

Fundraise for ELF

Memory wall

Corporate and philanthropy

About us

Our processes

FAQs

“Patients Included” in the European Respiratory Society International Congress

747,000 litres air blown to help raise awareness of spirometry

A Patient’s Journey Through Lung Cancer – just hear me out

A process of years: coming to terms with primary ciliary dyskinesia

A short guide to successful patient involvement in EU-funded research: Lessons learnt from the U-BIOPRED project

An Official American Thoracic Society/European Respiratory Society Policy Statement: Enhancing Implementation, Use, and Delivery of Pulmonary Rehabilitation

Are patients shaping healthcare across Europe?

Asthma research in Europe: a transformative agenda for innovation and competitiveness

Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS-ELF survey

Biomarker development in asthma from a patient’s perspective

Bringing the patient voice to the ERS Annual Congress

Building the investment case for asthma R&D: the European Asthma Research and Innovation Partnership argument

Calling for comfort – the unmet needs of European home ventilation users

Cardiopulmonary exercise testing (CPET) patient survey

Clinical Research Collaboration; New understanding in the treatment of cough (NEUROCOUGH) ERS Clinical Research Collaboration: improving care and treatment for patients with cough

Communication difficulties reported by patients diagnosed with idiopathic pulmonary fibrosis and their carers: a European focus group study

Cross-infection risk in patients with bronchiectasis: a position statement from the European Bronchiectasis Network (EMBARC), EMBARC/ELF patient advisory group and European Reference Network (ERN-Lung) Bronchiectasis Network

Development and evaluation of a free online course on core skills for patient involvement in healthcare

Sign up to our newsletter