Publications

http://breathe.ersjournals.com/content/11/4/249
Patient involvement

“Patients Included” in the European Respiratory Society International Congress

Authors: Smyth D, Powell P, Masefield S.
Published: 2015
https://breathe.ersjournals.com/content/7/2/118
Lung Function Testing

747,000 litres air blown to help raise awareness of spirometry

Authors: Siafakas N, Fletcher M, Carlsen KH
Published: 2010
https://ersguide.org/images/articles/2017-2018/RED-006-2017.pdf
Lung Cancer

A Patient’s Journey Through Lung Cancer – just hear me out

Author: Tom Simpson
Published: 2017
https://breathe.ersjournals.com/content/16/2/200116
Primary ciliary dyskinesia (PCD)

A process of years: coming to terms with primary ciliary dyskinesia

Authors: Lucy Bolt, Scarlett Bolt
Published: 2020
http://www.imi.europa.eu/sites/default/files/archive/uploads/PatientWorkshop2016/UBIOPRED_guide_2016.pdf
Patient involvement

A short guide to successful patient involvement in EU-funded research: Lessons learnt from the U-BIOPRED project

Author: Powell P
Published: 2016
https://pubmed.ncbi.nlm.nih.gov/26623686/
Pulmonary rehabilitation

An Official American Thoracic Society/European Respiratory Society Policy Statement: Enhancing Implementation, Use, and Delivery of Pulmonary Rehabilitation

Authors: Rochester CL,  Vogiatzis I,  Holland AE,  Lareau SC,  Marciniuk DD,  Puhan MA,  Spruit MA,  Masefield S, Casaburi R,  Clini EM,  Crouch R,  Garcia-Aymerich J,  Garvey C,  Goldstein RS, Hill K, Morgan M,  Nici L, Pitta F, Ries AL, Singh SJ,  Troosters T, Wijkstra PJ,  Yawn BP, ZuWallack RL.
Published: 2015
https://breathe.ersjournals.com/content/9/5/333
Patient involvement

Are patients shaping healthcare across Europe?

Author: Fletcher M
Published: 2013
https://erj.ersjournals.com/content/49/5/1602294
Asthma

Asthma research in Europe: a transformative agenda for innovation and competitiveness

Authors: Papadopoulos NG, Androutsopoulou A, Akdis C, Dahlén SE, Djukanovic R, Edwards J, L Garcia-Marcos,  Johnston SL, Kupczyk M, Martin TR, Myles D, Palkonen S, Powell P, Riley J, Walker S
Published: 2017
https://openres.ersjournals.com/content/3/2/00015-2017
Home ventilation

Attitudes and preferences of home mechanical ventilation users from four European countries: an ERS-ELF survey

Authors: Masefield S, Vitacca M, Dreher M, Kampelmacher M, Escarrabil J, Paneroni M, Powell P, Ambrosino N.
Published: 2017
https://breathe.ersjournals.com/content/15/4/277
Asthma

Biomarker development in asthma from a patient’s perspective

Author: Dominique Hamerlijnck
Published: 2019
https://breathe.ersjournals.com/content/8/2/91.article-info
Patient involvement

Bringing the patient voice to the ERS Annual Congress

Author: Fletcher M.
Published: 2011
Asthma

Building the investment case for asthma R&D: the European Asthma Research and Innovation Partnership argument

Authors: Walker S, Akdis C, Dahlén S-E, Djukanovic R, Edwards J, Garcia-Marcos L, Johnston S, Kupczyk M, Martin T, Myles D, Palkonen S, Papadopoulos N, Powell P, Riley J
Published: 2016
Home ventilation

Calling for comfort – the unmet needs of European home ventilation users

Authors: Masefield S, Powell P, Vitacca M, Ambrosino N.
Published: 2016
Pulmonary rehabilitation

Cardiopulmonary exercise testing (CPET) patient survey

Authors: J Boyd, P. Powell, I. Vogiatzis, D. Kontopodis, H. Hebestreit.
Published: 2018
https://erj.ersjournals.com/content/53/5/1900787
Chronic Cough

Clinical Research Collaboration; New understanding in the treatment of cough (NEUROCOUGH) ERS Clinical Research Collaboration: improving care and treatment for patients with cough

Authors: Lorcan McGarvey, Lieven Dupont, Surinder Birring, Jeanette Boyd, Kian Fan Chung, Marta Dabrowska, Christian Domingo, Giovanni Fontana, Laurent Guilleminault, Peter Kardos, Eva Millqvist, Alyn H. Morice, Jaclyn A. Smith, Jan Willem van den Berg, Charlotte Van de Kerkhove on behalf of the NEUROCOUGH
Published: 2019
https://openres.ersjournals.com/content/5/2/00055-2019
IPF

Communication difficulties reported by patients diagnosed with idiopathic pulmonary fibrosis and their carers: a European focus group study

Authors: Masefield S, Cassidy N, Ross D, Powell P, Wells A.
Published: 2019
https://pubmed.ncbi.nlm.nih.gov/29326319/
Bronchiectasis

Cross-infection risk in patients with bronchiectasis: a position statement from the European Bronchiectasis Network (EMBARC), EMBARC/ELF patient advisory group and European Reference Network (ERN-Lung) Bronchiectasis Network

Authors: Chalmers J, Ringshausen F, Harris B, Elborn S, Posthumus A, Haworth C, Pilkington N, Polverino E, Ruddy T, Aliberti S, Goeminne P, Winstanley C, De Soyza A.
Published: 2018
EPAP

Development and evaluation of a free online course on core skills for patient involvement in healthcare

Author: Masefield S.
Published: 2014
Sign up to our newsletter