ELF brings health professionals and researchers together with patients to understand patient perspectives on a wide range of topics and to help set the agenda for future research.
How easy is it for patients to complete pulmonary rehabilitation? Do clinical practice guidelines for COPD address the factors that are important to patients? How can I best design a clinical trial for people living with breathlessness?
Read more about how you can work with ELF to understand the experiences of people living with a lung disease.Read more
ELF participates in EU-funded research projects, in which we advocate for patient involvement, from project design to dissemination.
ELF involves patients in all stages of EU projects. ELF facilitates involvement of those living with a condition in research study design and on ethics boards. ELF Patient Advisory Groups can help ensure that recruitment targets are met and that the patients taking part in research can have a positive experience and that real-world outcomes are achieved by the project. ELF can also play a role in communication and dissemination of the project to key stakeholders outside of the respiratory professional community and ensure a legacy for the project.
Find out more about EU projects and submit your proposal.Find out more
Do you have patients who need reliable evidence-based information about their conditions? Do you need them in different languages and want to ensure that the content is reliable?
ELF has a range of more than 40 different factsheets on lung health and disease topics. These factsheets are translated into multiple languages and are free to download, print and use for your patients.
If we don’t have a resource that you need then please let us know by emailing email@example.comAccess our full range of resources
Healthy Lungs for Life is a global campaign run by ELF in partnership with ERS. The campaign aims to raise awareness of the importance of healthy lungs through a full range of events, projects and promotional activities.
The four themes of the campaign are
The campaign focusses on lung function testing as a means of educating everyone about the key topics. It also encourages online events and education.
Find out more about Healthy Lungs for Life
Access our education resources for Healthy Lungs for Life
The COVID-19 pandemic has put lung health at the forefront of everyone’s minds and made it more important than ever before to have healthy lungs. ELF provided evidence-based, multi-lingual and accessible lay guidance, support and advice to over 1.5 million individuals in 2020.
We know you understand the inequalities faced by patients in different countries and communities and our work aims to increase equality and understanding across Europe.
ELF appreciates the work you already do to support people living with lung conditions, but you could help us reach our vision of ensuring patients and carers are centrally involved in lung healthcare and research and that everyone in Europe will have clear, reliable information they can trust about lung health and disease in their own language.Find out how to fundraise for ELF Donate now
ELF’s ethos is to ensure that patients and healthcare professionals can work together to improve lung health in the future. Do you need patient input in your project, event or activity?
Learn more about:
ELF patient organisation network
ELF is committed to ensuring that patients are given access to reliable and evidence-based information where possible in their own language.
Do you want to communicate with patients and help ensure the sources of information they have are as good as possible?
Ways in which you could do this include:
We can help you to achieve all of these, please contact us to discuss further.Contact us
We have a team of volunteer translators who translate all of our website materials to improve lung health awareness all over Europe.
All translators are members of the European Respiratory Society (ERS) and experts in lung health.
In return, translators receive a certificate and acknowledgement of their work.
We are always looking for medical professionals to help keep our materials up to date. If you would be willing to dedicate your skills and time and are a member of the ERS, please contact us.
Do you have a patient who is keen to improve lung health research and care in the future? Why not propose that they get more involved with ELF? A first step could be to take the European Patient Ambassador Programme (EPAP).
EPAP introduces patients to some of the skills and knowledge they may need to represent themselves or others successfully. EPAP is a free online learning resource developed to help patients and carers gain the knowledge and confidence to get involved in lots of different areas of patient involvement.
The learning modules cover:
The Professional Advisory Committee is made up of a group of ERS specialists and professionals from primary care selected from across Europe. They guide ELF on the topics to write about, and assess all written material made available online to ensure content is accurate and reliable.
Our Professional Advisory Committee are all members of the European Respiratory Society (ERS).Meet the Professional Advisory Committee
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