This event has ended. Recordings of the event are available to watch below.
This event will take place on Tuesday 29 October at 10:00-11:00 CET (09:00-10:00 GMT)
Alongside Child-BEAR-Net, the Children’s Bronchiectasis Education, Advocacy and Research Network, we aim to support parents of children with bronchiectasis and their family and carers with up-to-date information about this condition.
This 1-hour webinar will see experts in childhood bronchiectasis answer a series of questions submitted by parents in advance. Our experts will answer as many of your questions as they can during this event.
To submit a question, please register for this free webinar and complete the form below.
This webinar is aimed at parents and family members of children and young people with bronchiectasis. However, anyone is welcome to join who would like to understand more about this condition.
More information about our panel and contributors is below.
Ed Powell is the chair of the ELF Youth Group and a member of the ELF Council. He has non-cystic fibrosis bronchiectasis and was diagnosed around eight years after first showing symptoms. Ed is passionate about raising awareness of lung health in young people and has spoken at the EU Parliament in Brussels on the subject.
Professor Ahmed (ami) Kantar is Head of Pediatric Unit and Pediatric Asthma and Cough Center, Istituti Ospedalieri Bergamaschi (Bergamo) and a Professor at University Vita-Salute San Raffaele in Milan. He currently co-chairs the ERS CRC Children's Bronchiectasis Education, Advocacy and Research Network (CHILD BEAR NET) with Professor Anne Chang. He has collaborated in developing ERS guidelines on Bronchiectasis in Children.
Zena has worked alongside ELF since 2019 as a parent-patient advisory member on non-cystic fibrosis bronchiectasis in childhood. Her son Ed was diagnosed with bronchiectasis 9 years ago, having first showed symptoms at 5 months old.
Zena's role within the Childhood Bronchiectasis PAG has included getting involved on the Taskforce to produce guidelines and set future research priorities. Since 2021, she has also been an active member of Child-BEAR-Net and sits alongside Ed on the ELF Core Council.
Professor Angela Zacharasiewicz is currently Head of Department of Paediatrics and Adolescent Medicine at Klinik Ottakring, Teaching Hospital of the University of Vienna since 2022. She is also Head of the Working Group Paediatric Pneumology of the OGP (Austrian Society of Pneumology).
Laura Petrarca is a paediatric pulmonologist, currently working as post-doc at Sapienza University of Rome. In 2020, Laura gained a post-graduate degree in Paediatrics, before achieving a PhD in Innovative Biomedical Technologies in Clinical Medicine in 2024. She has interests in childhood lung health and function, especially in asthma, non-cystic fibrosis bronchiectasis and acute viral bronchiolitis.
Dr Pamela Laird is a senior paediatric respiratory physiotherapist at Perth Children’s Hospital (PCH) with over 30 years of clinical experience in management of children with respiratory disease in both the USA and Australia. Pamela is also the mother of three (now grown children) all of whom had bronchiectasis. She is passionate about improving health outcomes for children and young people with bronchiectasis.
Pamela’s current clinical and research work is focused on raising awareness and preventing bronchiectasis in children. Pamela is currently co-chair of the European Respiratory Society’s taskforce on guidelines for airway clearance management for children and adolescents with chronic suppurative lung diseases and the physiotherapy lead for the Child-BEAR-Net.
ELF does not charge for its events and materials. We want to make sure they are available to anybody who wishes to join or use them. To ensure we can keep doing this we ask that those who can afford to pay to make a donation.
We are grateful to everyone who supports us in this way and helps lung health patients to understand more about their condition and have their voices heard.
