Youth group

The ELF Youth Group is for people who are 16-24 years old with a lung condition and passion for lung health. The purpose of the group is to identify and advocate for the needs of young people with lung conditions.

We believe that young people have a lot to give to the lung patient community, to healthcare professionals and to projects that focus on lung health. Learn more on our Youth Group page.

Transplantation

This group was formed in line with the ELF Strategy to prioritise the topic of lung transplantation. The initial scope of work was the production of materials on transplantation on the ELF website. This included written content and also a video sharing personal experiences of transplantation.  

As the Chair’s Campaign also has a focus on lung transplantation, the group may be called upon over the campaign lifespan 2023-2026, to provide ad hoc advise on the topic and input from the patient and professional perspective.

Digital health

The Digital Health Working Group has been working on a combined project between the CONNECT Clinical Research Collaboration and the DRAGON EU project. They have been looking at how digital health can affect the relationship between patient and clinician in both positive and negative ways. The group’s views and experiences have been taken forward into a publication exploring the topic from both patient and clinician viewpoints.

Mental health

The mental health working group is currently discussing priorities.

Climate change and air pollution

The climate change and air pollution working group was established in 2023 to help develop the Breathe Clean Air Patient Conference in December 2023.

It now provides a source of patient perspectives and lived experience which is crucial to some of our advocacy work, as well as being an active and passionate group on raising awareness on these key issues. The group also supports on the delivery of the now annual Climate change and Air Pollution Patient Conference.