BEAT-PCD (Better Experimental Approaches to Treat PCD) is a European Respiratory Society (ERS) Clinical Research Collaboration (CRC). The project would like to invite people with Primary Ciliary Dyskinesia (PCD) and parents of children with PCD, to take part in a study to help to identify gaps where PCD information/education material is needed for patients and caregivers of all ages and nationalities.
By answering these questions you are helping us to develop and disseminate the right materials.
Please find below the links to the survey which have been translated into several languages:
Find out more about BEAT-PCD.
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ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79