Child-BEAR-Net has launched a survey to gather views from people affected by childhood bronchiectasis. They want to know which outcomes are the most important for future clinical research in childhood bronchiectasis.

Child-BEAR-Net is an international network and Clinical Research Collaboration (CRC) of the European Respiratory Society (ERS). Their goal is to improve the care and clinical outcomes of children and adolescents with bronchiectasis.

They would like to hear from:

  • parents of children with bronchiectasis, and
  • adults who were diagnosed with bronchiectasis as children.

The survey asks you to rate how important a range of outcome measures (endpoints) are to you. It will only take 10 minutes to complete. Your views will help make future research studies more relevant for people with bronchiectasis.

The survey is available in English, German, Italian, Russian, Turkish and Ukrainian. Select your language from the drop-down box on the survey page.

Take part in the survey:  https://www.surveymonkey.co.uk/r/BEendpoints