Do you suffer from chronic obstructive pulmonary disease (COPD) or emphysema?
Do you care for someone suffering from COPD or emphysema?
Your experiences and views are crucial to our research project!
This survey is organized by the European Respiratory Society and the European Lung Foundation.
Please help us to understand what factors are important to patients and the people caring for them during an exacerbation or flare-up of chronic obstructive pulmonary disease (COPD).
This survey aims to improve the design and quality of future clinical trials (research studies).
When new treatments are developed, they are tested in clinical trials to make sure they work and are safe. Researchers don’t always use the same criteria (which are called outcomes) to test new treatments. An outcome in a study testing a new treatment for COPD may be a measurement of how breathless you feel after taking the treatment.
Some outcomes provide more useful information than others. Because the types of outcomes used can change between trials it can be difficult to understand what some trials have found out. And it is hard to compare the findings from one trial with another. This can make it difficult to tell if the new treatments work or if they are safe.
With this survey we want to find the most important outcomes for these trials. We will then ask all future clinical trials to use these outcomes.
We appreciate this is a difficult time for patients and professionals in the respiratory community. While all efforts should rightly be focused on caring for those affected by COVID-19, we believe that research to improve care and outcomes for respiratory patients is needed now more than ever. For this reason, we would very much appreciate your participation in this survey.
The survey is available in the following languages:
Thank you for your participation.
Learn about the conditions that can affect our lungs and access our lung condition specific information.
Learn more about life with a lung condition and things you can do to improve your quality of life.
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.