Share your experiences and priorities for COVID-19 outcomes in a new research project

The Core Outcome Measures in Effectiveness Trials (COMET) Initiative has launched a COVID-19 Core Outcome Sets (COS) project. They have created a survey asking people to rate what outcomes are most important to those with suspected or confirmed COVID-19 and their families. Everyone is invited to take part by filling in a survey, available in English, Spanish and Italian.

Please note that ELF is not directly involved in this project, but has been asked to share the information on the COVID-19-COS Project.

The COVID-19-COS Project – Invitation to take part

In response to the COVID-19 global pandemic, much research is underway to inform the care of people with suspected or confirmed COVID-19. We urgently need to know what outcomes are important to people with suspected or confirmed COVID-19, their family members, community members and health professionals. Your input will help us to quickly develop a “core outcome set” in COVID-19. This is a list of outcomes (which are the impacts of COVID-19 or its treatment on patients) that should be reported, as a minimum, in all clinical trials in COVID-19. This will ensure that research and clinical guidelines address outcomes that are meaningful and important. This study will involve the completion of two short survey rounds (10 minutes each) in order to try and reach agreement among the group. You will be asked to give your opinion on the importance of 25 outcomes for people with suspected or confirmed COVID-19. The survey is anonymous, and anyone can participate. Round 1 is planned to close 16 April 2020 at 01:00 CEST and all participants who complete the survey will receive a copy of the results.


Thank you so much for your participation. Once you have completed the survey please feel free to forward this email to others who you may be interested.