ELF patient organisation network: update your details

Are you part of the ELF patient organisation network? Then it’s time to update your details.

Would you like to be part of the network? Then now is a good time to join!

Why are we updating patient organisation details?

ELF is currently working on its new website. The new website will give more exposure and visibility to all patient organisations and people affected by lung conditions.  We want to make sure that your details are up-to-date and give you the chance to tell us what information about your organisation you want us to share. We also have some questions about transparency to make sure that organisations in the network do not have any conflicts of interest.

The ELF patient organisation network brings together diverse organisations and groups working in respiratory health from across Europe and beyond. Organisations in the network can cover all or any respiratory disease, can be large or small, and can work in supporting patients, providing information, driving research and many other vital activities.

The network:

  • promotes collaboration, networking and sharing best practice;
  • helps organisations find others in their country and disease area;
  • raises awareness of patient organisations and their activities with the public and healthcare professionals;
  • helps healthcare professionals, researchers and policy makers find patient organisations to work with;
  • provides opportunities for patient organisations and their members to get involved in research and advocacy;
  • gives organisations a chance to drive and get involved in ELF and European Respiratory Society (ERS) activities; and
  • helps individual patients find patient organisations to contact or get involved with

The network is free to join for organisations that fit the following criteria.

  • Not-for-profit respiratory health-related organisations that represent or work with patients
  • Based in Europe and/or represent patients in Europe
  • Interest in actively working with ELF and other organisations to improve respiratory health in Europe

View the current list of member organisations.

Update your details or sign up your organisation by completing the following form:

Following completion and approval, your organisation will be made ‘active’ on the ELF database and it will appear on the new website when it is launched.

If you have any questions, please email