ELF worked with 29 health stakeholders to issue a joint statement with recommendations for policy makers on how to harness digital health data across Europe via the European Health Data Space (EHDS) Regulation.
In response to the proposal for a Regulation on the European Health Data Space (COM 197/2022), a group of 29 health stakeholders created a joint statement “Ensuring the full potential of EHDS: Stakeholders’ recommendations on how to make the digital transformation a success across Europe”. The group includes medical professionals and research organisations, patient representatives, industry associations and data collaborations. They all strongly support the aims of the EHDS as proposed by the European Commission.
This ambitious Regulation has the potential to harness the benefits of the digital age for better health outcomes. It aims to improve the availability and quality of electronic health data. This will ensure that healthcare can safely continue across borders. It will empower patients to have greater access to, and control over, their own health data across Europe.
The statement encourages national and European decision-makers to support this Regulation and to engage with stakeholders. This will help ensure the final Regulation reaches its potential. The statement also outlines several recommendations for when the Regulation is put into practice across EU Member States:
Read the consensus statement in full: https://europeanlung.org/wp-content/uploads/2022/10/EHDS-consensus-statement.pdf
To endorse the statement on behalf of your organisation, please contact email@example.com
Learn more about this EU initiative: https://health.ec.europa.eu/ehealth-digital-health-and-care/european-health-data-space_en
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