ERN-Lung Population Registry: Helping to improve research into rare lung conditions

People with rare respiratory diseases can self-register on the ERN-Lung Population Registry to help improve research in the field

Would you like to help scientists understand more about your disease and support research in the field of rare respiratory diseases?

The ERN-Lung Population Registry is a European registry that records data from people affected by rare respiratory diseases. It is available in German and English.

Patients or their relatives can self-register online, enter their data and give their consent to share this with scientists.

Once registered, experts and researchers may inform you about other disease-specific registries, studies or clinical trials that you might like to be involved with. This contact is made through an email function in the registry.

To find out more and register please go to

You can find out more about ERN-Lung at