Get advice from experts about your rare disease with EXABO

Expert Advisory Board (EXABO) for rare respiratory diseases

EXABO is an online advice system that connects people living with a rare respiratory disease to experts in the field.

You can ask a question in English or German. Your answer will come from an expert within ERN-LUNG, the European Reference Network on rare respiratory diseases.

You will be asked to include your question, some basic information (gender, age) and your email address for them to send the answer to.

EXABO is an opportunity for people with a rare condition to get answers to their questions and receive reliable information. Please note that experts will not be able to make a diagnosis or give personal treatment recommendations.

Find out more and ask your question here: