We have launched a pilot initiative to help recruit patients into clinical trials in the respiratory field across Europe.
ELF is running a pilot with a company to see if we can help recruit individuals for ongoing clinical trials in Europe in different respiratory disease areas. The reason we are trialing this is because many members of ELF Patient Advisory Groups (PAG) ask us to share information about what clinical trials are taking place, where and whether they can be part of them.
Developing medications is a structured and regulated process. It usually begins with an idea that a certain compound could benefit patients by improving their condition. Drugs cannot be used to treat people in Europe until they have gone through clinical trials. Clinical trials are research studies that test whether new drugs are safe and effective in people.
The compound is first tested in the laboratory – in cells or animals – to find out if it could be beneficial. Only then is the compound tested in humans, in a series of clinical trials. If these prove safe and effective, the compound may then be licensed and marketed as a drug for treatment of the condition. Clinical trials are usually conducted by drug companies, but in some cases by academic institutions.
We will be working with a company called Citeline who recruit people into clinical trials for many different drug companies. They will inform us if they are working on any clinical trial happening in any respiratory condition in Europe.
We will share the details of that trial with the ELF Patient Advisory Group (PAG) in that disease area. The PAG will decide if it is relevant and will tell us if they think we should inform others about the clinical trial opportunity.
Whenever someone joins a clinical trial through the ELF referral link, ELF will receive a referral fee, which we will use to support our work in that disease area.
For information about current clinical trials, please see below.
Also consider accessing the European Patient Ambassador Programme (EPAP) free, online module on ‘Supporting research and development’ to get more detailed information and knowledge about clinical trials and health research. Register at www.epaponline.eu.
Please note that these clinical trials are in no way recommended or endorsed by ELF and any decision to join a clinical trial must be made by an individual and in consultation with their healthcare professional.
Citeline is currently recruiting to a trial to try a new treatment for non-tuberculous mycobacterial (NTM) infections caused by the Mycobacterium avium complex (MAC). This trial is currently recruiting patients in Austria, Germany, Italy and the UK. If you are interested in participating in this trial or want to know more, please click on the relevant link below for more information:
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