Join a patient advisory group and help to improve treatment and healthcare

We are inviting people to join two new Patient Advisory Groups (PAGs) we are setting up related to the following lung conditions:

  • Aspergillosis
  • Pulmonary fibrosis (PF)

New people would also be welcome to join some of our more established PAGs: 

  • Chronic cough PAG (we particularly welcome men to this group as they are under-represented in this area)
  • Asthma PAG
  • Chronic obstructive pulmonary disease (COPD) PAG
  • Lung cancer PAG

What is involved?

As a member of a PAG, you will be asked to share your perspectives on living with your condition. This might include how it impacts your daily life, your thoughts on treatment and aspects of your condition that may not have been researched. You would also have the chance to highlight any information gaps or priorities that you think are important to patients and caregivers.

PAGs communicate by email and meet regularly by teleconference/videoconference currently.

Any reasonable costs for getting involved will be covered in line with our expenses policy. Please note that these are voluntary roles and we are unable to pay for your time.

Read what Annette and Rita have to say about their experiences of being patient advisory group members

We would love to hear from you if you:

  • Are over 18 and have experience of living with one of the conditions listed above
  • Are resident in a European country
  • Can communicate in English (spoken and written)
  • Are willing to share your perspective on living with your condition
  • Have access to a computer and the internet.

We are also keen to widen our membership to include more:

  • People who live in countries all across Europe – we are generally over-represented by people living in the United Kingdom and the Netherlands.
  • People from Black, Asian, and minority ethnic groups.

How to get involved

If you are interested in getting involved in a PAG or would like to find out more, please email