Our core content on Lung conditions and related factsheets has been translated to a number of other languages.
For more languages explore all available Factsheet translations.
Volunteer as a translator or learn how to translate using Chrome, Firefox or Edge browsers.
Our core content on Lung conditions and related factsheets has been translated to a number of other languages by our volunteer team.
For more languages explore all available Factsheet translations.
Volunteer as a translator or learn how to translate using Chrome, Firefox or Edge browsers.
Home » Medicines for children and rare diseases
The European Commission has launched an open public consultation on the revision of the legislation on Medicines for children and rare diseases.
This is an important step in the process of assessing the impact of possible amendments to EU rules for these medical areas. Recent evaluation has shown that the regulations have stimulated research and development of medicines to treat rare diseases and of medicines for children. However, while 95% of rare diseases still have no treatment option, the evaluation also revealed shortcomings in the current system concerning the development of medicines in areas of high unmet need for patients and their accessibility to all EU patients across the Member States.
Interested parties, in particular health professionals, patients, doctors, academia, researchers, the pharmaceutical industry and citizens are invited to share their views via a questionnaire, until 30 July, to help explore several options in view of the revision of the legislation. A link to take part in the consultation can be found here: https://ec.europa.eu/eusurvey/runner/365da2e0-d08b-1c1a-12ad-798e09530fe9?surveylanguage=en
Please do let us know (info@europeanlung.org) if you would like to be part of a combined response from the respiratory community.
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.
ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.
No description