To address the lack of published research priorities for children and young people with bronchiectasis, the ERS Task Force for childhood bronchiectasis and the European Lung Foundation (ELF) and its Childhood Bronchiectasis Patient Advisory Group have created an international roadmap of clinical and research priorities which will help inform changes that will benefit the lives of children and young people with bronchiectasis.
The roadmap was based on two international surveys: one with parents of children and young people as well as adults diagnosed with bronchiectasis in childhood and the second with healthcare professionals working in the paediatric bronchiectasis field.
Based on both surveys, the top 10 research priorities were obtained and you can read more about the survey findings and the consensus priorities in: Clinical and Research priorities for children and young people with bronchiectasis: an international roadmap published in ERJ Open Research.
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.
ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79
Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.
Performance cookies are used to understand and analyze the key performance indexes of the website which helps in delivering a better user experience for the visitors.
Advertisement cookies are used to provide visitors with relevant ads and marketing campaigns. These cookies track visitors across websites and collect information to provide customized ads.