We are delighted to launch our new website providing information about sarcoidosis for people with the condition and their family members and caregivers during Sarcoidosis Awareness Month. We aim to raise awareness of this rare condition and signpost to useful resources and organisations in Europe and beyond.
The website includes a new resource, the Sarcoidosis Patient Compass. This is an interactive tool to help people navigate their own sarcoidosis journey, and to highlight key questions they may want to ask healthcare professionals involved in their care. The patient compass is available to download for free and is available in Dutch, English, French, German and Italian with versions in Serbian and Spanish coming soon.
The website also links to patient support organisations across the globe who you can contact to get more detailed information about sarcoidosis in your own language.
The website has been developed with input from the ELF sarcoidosis patient advisory group and healthcare experts from the European Respiratory Society in the sarcoidosis field from around the world. Our thanks to everyone who has been involved in sharing their experiences, views and expertise.
We hope you will fill in our short survey and give your feedback on the website. We will be adding more content over the next few months so let us know what you would like us to include.
Visit the sarcoidosis website at www.europeanlunginfo.org/sarcoidosis
Download the sarcoidosis patient compass at https://www.europeanlunginfo.org/sarcoidosis/patient-compass/
Learn about the conditions that can affect our lungs and access our lung condition specific information.Read more
Learn more about life with a lung condition and things you can do to improve your quality of life.Read more
Learn about the factors that can cause lung disease and the ways to reduce your contact with them.Read more
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