Summary of the patient webinar on 9 June 2022: ‘Understanding the latest sarcoidosis treatment recommendations’
On 9 June, ELF ran a webinar with members of the European Respiratory Society (ERS) Task Force who developed the recent ERS Sarcoidosis Treatment Guideline.
The event gave people with sarcoidosis and their caregivers a chance to hear from sarcoidosis experts across the world about the guideline recommendations and to ask questions.
It was the first time we had trialled an event to disseminate information about a clinical guideline. The main presentation was available to watch in a range of languages and attendees could join language-specific breakout rooms to ask questions. French, Spanish and Italian proved very popular.
Unfortunately, due to a technical issue on the day, not all those who registered were able to attend the webinar. For this reason, we are planning to repeat the webinar in September 2022 as separate standalone events in the following languages:
If you would like to be informed when registration opens for these webinars, please leave your email address at: https://www.surveymonkey.co.uk/r/SarcwebinarsSept.
103 people attended the webinar and 24% completed the evaluation form. Everyone who completed the form wanted us to run more virtual events about sarcoidosis in the future.
Quotes from attendees:
“It was encouraging to hear the experts’ acknowledgement that quality of life is extremely important to patients and that any treatment should be a shared decision.”
“Wonderful possibility to meet other people like me and to talk with scientists and doctors.”
“I’m a respiratory practitioner working in the UK, and I found it very useful hearing from patients/carers and their questions. It was useful to hear the experts’ responses to the questions.”
“More webinars like this would be awesome.”
The recording of the event is now available to watch on the main event page alongside the main presentation in a range of languages. You can also find the programme, speakers and sarcoidosis treatment guidelines.Event page
Sign up to our free monthly newsletter to get the latest information and research news on lung conditions, plus views from experts and patients! You can unsubscribe at any time.