We invite all people with primary ciliary dyskinesia (PCD) and parents/carers of children with PCD to participate in this survey to identify which research areas are most important to them. The survey is available in 8 languages.
There are still many unanswered questions related to PCD. Your opinion can play an important role in developing future research projects to help improve the health and quality of life for people with PCD.
This survey has been developed by BEAT-PCD, a large network of clinicians and researchers interested in PCD.
The survey is completely anonymous, and no traceable information is collected. It will take about 10 minutes to complete. Access the survey in the following languages:
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ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79