Would you like to help improve treatment and healthcare? Join a patient advisory group today!

People living with a lung condition are at the heart of European Lung Foundation’s activities. ELF’s Patient Advisory Groups, or PAGs for short, bring together patients, parents and caregivers of people living with a lung condition. Drawing on their experiences of diagnosis and treatment, PAG members help to improve future healthcare and highlight areas where more research is needed. 

 We are inviting people to join PAGs in the areas below:  

• Asthma 
• Chronic cough – we particularly welcome men to this group as they are under-represented in this area 
• Chronic obstructive pulmonary disease (COPD) or emphysema 
• Lung cancer 
• Childhood bronchiectasis (parents of a child with bronchiectasis) 
• Sleep and breathing disorders
   

What is involved? 

As a member of a PAG, you will be asked to share your perspectives on living with your condition. This might include how it impacts your daily life, your thoughts on treatment and aspects of your condition that may not have been researched. You would also have the chance to highlight any information gaps or priorities that you think are important to patients and caregivers. 

PAGs communicate by email and currently meet regularly by videoconference. 

Any reasonable costs for getting involved will be covered in line with our expenses policy. Please note that these are voluntary roles and we are unable to pay for your time. 

Hear from our PAG members about what their role involves:

• Annette and Rita talk about their role on the Sarcoidosis and Bronchiectasis PAGs
• Meet the ELF Sarcoidosis PAG
• Meet the ELF Cough PAG 
• Meet the ELF Lung Cancer PAG
• Meet the ELF Aspergillosis PAG

We would love to hear from you if you: 

• Are over 18 and have experience of living with one of the conditions listed above. This may be through having the lung condition or caring for someone with the lung condition, for example as a parent, spouse or loved one.  
• Are willing to share your perspective on living with the condition 
• Can communicate in English (spoken and written) 
• Have access to a computer and the internet. 

We are also keen to widen our membership to include more: 

• People who live in countries all across Europe and the rest of the world – we are generally over-represented by people living in the United Kingdom and the Netherlands. 
• People from Black, Asian, and minority ethnic groups. 

How to get involved 

If you are interested in getting involved in a PAG or would like to find out more, please email info@europeanlung.org.