People living with a lung condition are at the heart of European Lung Foundation’s activities. ELF’s Patient Advisory Groups, or PAGs for short, bring together patients, parents and caregivers of people living with a lung condition. Drawing on their experiences of diagnosis and treatment, PAG members help to improve future healthcare and highlight areas where more research is needed.
We are inviting people to join PAGs in the areas below:
What is involved?
As a member of a PAG, you will be asked to share your perspectives on living with your condition. This might include how it impacts your daily life, your thoughts on treatment and aspects of your condition that may not have been researched. You would also have the chance to highlight any information gaps or priorities that you think are important to patients and caregivers.
PAGs communicate by email and currently meet regularly by videoconference.
Any reasonable costs for getting involved will be covered in line with our expenses policy. Please note that these are voluntary roles and we are unable to pay for your time.
Hear from our PAG members about what their role involves:
We would love to hear from you if you:
We are also keen to widen our membership to include more:
How to get involved
If you are interested in getting involved in a PAG or would like to find out more, please email firstname.lastname@example.org.
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