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Home » People and partners » Patient Advisory Groups » Aspergillosis Patient Advisory Group

Aspergillosis Patient Advisory Group

Our Patient Advisory Groups or PAGs are made up of people who have an interest in a particular lung condition or topic related to lung health. Members share their views and get involved in projects to help improve treatment and healthcare.

The Aspergillosis PAG works to raise awareness of this condition and to improve diagnosis, treatment and care. Their activities include working alongside healthcare professionals and researchers from the Chronic Pulmonary Aspergillosis Network (CPAnet) to improve diagnosis and treatment for chronic pulmonary aspergillosis.

Aspergillosis PAG activities

PAGs are set up to contribute to ELF and ERS priority-setting, and input into projects such as Task Forces and Clinical Research Collaborations (CRCs). PAGs may also contribute to other initiatives such as EU projects and ERS assemblies. Some PAGs may initiate their own patient-driven projects.

The Aspergillosis PAG was set up in 2020 when ELF got involved in a new research collaboration. Learn more about their activities here:

The European Respiratory Society (ERS) Congress
The European Respiratory Society (ERS) Congress

The European Respiratory Society (ERS) Congress

The annual ERS Congress can provide a number of opportunities for ELF PAGs. Aspergillosis PAG members have played an important role in ensuring that patients have a platform and a voice at the event and some have represented their organisations at our annual Patient Organisation Networking Day.

Contributing to ELF resources on antimicrobial resistance (AMR)
Contributing to ELF resources on antimicrobial resistance (AMR)

Contributing to ELF resources on antimicrobial resistance (AMR)

Antimicrobial resistance (AMR) happens when people overuse medications used to fight the bugs that cause many common diseases.

 

Members of the Aspergillosis PAG helped to produce a new resource on AMR in 2023, which discusses who it affects, how it occurs and what can be done to prevent it.

 

Learn more.

CPAnet
CPAnet

CPAnet

Members of the Aspergillosis PAG work alongside scientists and healthcare professionals to improve diagnosis and care for the condition. The PAG are involved in setting research priorities and in identifying information and education gaps for patients and healthcare professionals.

 

Learn more.

Latest aspergillosis news

Conversation with Lisa McNeil
Aspergillosis

Conversation with Lisa McNeil

12/07/2023
Meet the ELF Aspergillosis PAG
Aspergillosis

Meet the ELF Aspergillosis PAG

15/02/2022

Interested in joining one of our PAGs?

ELF will provide support, guidance and training to help you share your perspective and get involved in projects through our European Patient Ambassador Programme (EPAP). Please note that this is a voluntary role and we are unable to pay for your time.
You can read about the aims, membership and practical arrangements of our PAGs in our PAG Terms of Reference. Or get in touch with the ELF team today using the button below.

Contact Us

ELF is a non-profit organisation registered as a UK company (VAT no. GB 115 0027 74) and charity (no. 1118930).
Our Brussels office enterprise number is 0738.383.695
European Lung Foundation's TR ID number in the Transparency Register is: 094039644810-79