The annual ERS Congress can provide a number of opportunities for ELF PAGs. Lung cancer PAG members have played an important role in ensuring that patients have a platform and a voice at the event.

Members have shared their experiences in scientific sessions and been involved in talks during at the ELF Patient Organisation Networking Day.

Members of the Lung Cancer PAG shared their experiences and contributed to ERS Guidelines for the quality of care of lung cancer. These clinical guidelines are used as a document for healthcare professionals to understand how to best manage and treat lung cancer.

Members are involved in a number of task forces, where they update guidelines to improve lung cancer treatment and care, and ensure that everyone living with lung cancer has access to the appropriate treatments.

The Lung Cancer PAG are also involved in a clinical research collaboration to share data on lung cancer through a digital network. The aim of this is to improve the diagnosis, treatment and experiences of people living with lung cancer.

Members of the Lung Cancer PAG shared their experiences within an ERS statement, published in 2018, which highlights how collecting data about lung cancer can be improved on a European level.

Read the statement.