Matt was diagnosed with idiopathic pulmonary fibrosis in 2010. Since 2013, he has been a voluntary patient advocate with the Irish Lung Fibrosis Association. He is a leader in the Dublin Pulmonary Fibrosis Support Group as well as a member of ELF’s Pulmonary Fibrosis Patient Advisory Group. He was involved in the creation of the “Pulmonary Fibrosis Supportive Guide” for patients and caregivers. In June 2024 he celebrated fifty years doing voluntary work, mainly in the local community and on health-related activities.

Ilaria has been coping with systemic sclerosis and lung fibrosis for almost 30 years. As a patient advocate, Ilaria wishes to improve equity and access to treatments.

Steve lived with idiopathic pulmonary fibrosis before having a lung transplant in 2016. He is an active advocate for people living with pulmonary fibrosis and is the former President of EU-PFF and former Council Member of ELF.

Stephen is the founding chairman of Bolton Pulmonary Fibrosis Support Group and lay representative of the Standards of Care Committee. He is also a member British Thoracic Association and the Interstitial Lung Disease-Interdisciplinary Network (ILD-IN). In 2024, Stephen was named CEO Magazine's Chairman of the Year.

Chantal is a member of the Executive Board of EU-PFF and Vice-President for International Relations of ABFFP, a Belgian organization for Pulmonary Fibrosis patients.

Aside from this, Chantal cares for her husband who received a double lung transplant in 2020 after living with idiopathic pulmonary fibrosis (IPF). She is keen to share her experiences as a carer and support others living with pulmonary fibrosis (PF).