My name is Cora and I am a 22 year old law student from Berlin. I was diagnosed with cystic fibrosis before I was born. I joined the ELF Youth Group because I liked the idea of connecting with other young people around Europe. Having joined the ELF Youth Group, I look forward to raising awareness of lung health. 

The rockiest part of my journey was after birth. I suffered a blockage in my digestive system, which is very common among newborns with cystic fibrosis. My digestion improved but I still struggled with eating, sickness and appetite for many years. Looking back, I assume there were also psychological reasons that lowered my appetite. Whilst these problems eventually got better, I am still unsure how this happened. At 5 or 10 years old, I could not imagine the quality of life that being at peace with food would mean. I get to experience that now and it brings me joy every single day. 

Issues with my lung health have been rare. So far, major infections have spared me (except for one which warranted 3 months of antibiotics and has not been detected since). I can do sports, study full time and do not have any symptoms that impair me. However, preventative treatment with inhalers and regular check-ups makes me feel safe. Although I want to be grateful for how well I am, it is normal to worry about the chance of exacerbations.  

Through the ELF Youth Group, I want people to understand how diverse communities can be, even those living with the same chronic lung condition. People can be more or less impacted, of different ages and social origins. Illness is the only common thing, one constant at all stages of life.