Lung cancer: useful resources
This page shares a range of resources for lung cancer from treatment decision aids, to patient organiations, resources and online communities in your own country.
You may also be interested in the following pages:
- Lung cancer
- Rare lung cancer
- Lung cancer screening
Content Table
Treatment decision aid
This tool is for people diagnosed with stage III / N2 lung cancer to explore their treatment options.
This interactive patient decision aid tool gives information on treatment options offered to people diagnosed with stage III / N2 lung cancer. These options include surgery or radiotherapy, both in combination with chemotherapy.
The aim of this tool is to support your decision-making when both surgical and radiotherapeutic options are available.
This tool is not intended to replace a consultation with the radiation oncologist and the thoracic surgeon and we recommend that you discuss all options in detail with your doctors as each individual is unique with different levels of fitness and medical needs.
What does the tool do?
- Outlines the advantages and disadvantages of each treatment.
- Takes you through the options in an interactive way to help you identify your own preferences.
- Includes a quiz at the end of each section to test your understanding of each treatment option.
- Prints your own table of preferences to take with to your doctor’s appointment to help your discussions.
This tool was also developed with representation from the European Society of Thoracic Surgery (ESTS) and the European Society for Radiotherapy & Oncology (ESTRO). This tool is endorsed by ESTRO and ESTS.
Guidelines and research
You can find more in-depth medical information about lung cancer in the European Respiratory Society publications below.
This information is designed for healthcare professionals but will be of interest to some individuals in search of more advanced information.
Lung cancer guidelines:
- European Respiratory Society guideline on various aspects of quality in lung cancer care 2023
- Developing a pan-European technical standard for a comprehensive high-quality lung cancer computed tomography screening programme: an ERS technical standard
- Combined endobronchial and oesophageal endosonography for the diagnosis and staging of lung cancer 2015
EU-funded research project:
The EU-funded SOLACE project is looking at how countries can roll-out national lung cancer screening programmes. The project will break down the barriers to screening to ensure people across all social and economic groups can access it. Find out more.
Patient priorities guidance
In 2017, the ELF Lung Cancer Patient Priorities project put together a range of resources and content to share what matters most to people with lung cancer. This included a document focused on patient priorities for treatment and care and tips for building quality patient-professional relationships. You can download these documents below:
Website resources and online support
These resources have been identified by people with experience of lung cancer and may be able to offer you further information and support. We do not endorse or moderate any of these resources or online groups so do think about the details you share and check any advice offered with a healthcare professional.
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English
Website resources:
- Macmillan Cancer Support
- Roy Castle Lung Cancer Foundation
- Patient Power videos (small cell lung cancer)
- LuCE
- The Irish Lung Cancer Community
- Ruth Strauss Foundation
- ALK+ UK
- EGFR positive UK
- Cancer Research UK
Independent forums:
- Inspire lung cancer survivors support and discussion group
- ACOR lung cancer discussion groups
- The Roy Castle Lung Cancer Foundation lung cancer forum
- Macmillan lung cancer group
- LUNGEVITY lung cancer support community discussion forums
- The British Lung Foundation Forum
- Irish Cancer Society – Lung Cancer Forum
- Rollercoaster – Coping with Cancer forums
- Cancer Support Community
Facebook groups:
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Čehu
Website resources:
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Deutsch
Website resources:
- Deutsche Krebshilfe
Deutsches Krebsfoschungszentrum Krebsinformationsdienst (German Cancer Research Center)
Independent forums:
- Deutsche Krebshilfe
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Ελληνικά
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Francais
Websites and online resources:
- Lungenliga Schwiez (FR):
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Italiano
Websites and resources:
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Nederlands
Organisations and resources:
- KWF Kankerbestrijding – Longkanker brochure (PDF)
- Stichting Tegan Kanker (Cancer Foundation, Belgium)
Facebook groups:
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Norsk
Facebook group:
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Polski
Website resources:
- Medycyna Praktyczna – Archipelag Onkologia
- Objawy Raka Pluca (Macmillan Cancer Support)
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Romanian
- Macmillan Cancer Support
- Chimioterapie (chemotherapy)
- Radioterapie (radiotherapy)
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Pусский
- Macmillan Cancer Support
- Рак легких (lung cancer factsheet)
- Химиотерапия (chemotherapy)
- Лучевая терапия (radiotherapy)
Find support in your country
Use our patient organisation network page to find organisations focused on lung cancer in your country.
ELF Patient Organisation Network