At ELF, we work closely with the European Respiratory Society (ERS) to ensure that patient voices are heard in respiratory care and research. To remove barriers and highlight the importance of patient priorities, patient perspective chapters in the ERS Monographs are now free to access and download.
The ERS Monographs are highly regarded, expert-reviewed publications aimed at healthcare professionals. These books cover important topics in lung health. Thanks to the strong partnership between ELF and ERS, the chapters authored by people with lived experience are now free to access. This reflects our shared commitment to making sure patients have a platform and visibility to share their experiences and continue to be involved in key discussions within lung health.
Patients and advocates bring unique insights that can shape clinical care and research priorities. By making these chapters accessible to all, we ensure that patient priorities can influence the wider respiratory community, from healthcare professionals to researchers and policymakers.
Dimitris Kontopidis, ELF Chair, said:
“These chapters show what is possible when patients are treated as equal partners in respiratory care. By sharing our lived experience directly with healthcare professionals, we help ensure that care and research truly reflect the needs and priorities of the people they are meant to serve. Making these chapters free to access and visible makes this work even more meaningful.”
Professor Peter Calverley, Chief Editor of the ERS Monograph, said:
“The inclusion of patient perspective chapters in the ERS Monograph highlights the unique and valued role of ELF within ERS. As our patient organisation, ELF ensures that lived experience is integrated into professional education and scientific dialogue. These chapters offer vital insights for healthcare professionals and reinforce our commitment to patient involvement in respiratory medicine.”
Explore patient perspective chapters on topics including:
Each chapter brings real-life experience to the forefront of scientific literature, emphasising that patient voices are an important part of the conversation.
“These chapters vividly describe the lung transplant patient’s journey and many of the challenges we face before and after transplant. They should be essential reading for all transplant clinicians and healthcare professionals. I commend ELF is amplifying the patient voice in this way.”
— Steve Jones, member of ELF Pulmonary Fibrosis PAG and Emeritus President European Pulmonary Fibrosis Federation. Single lung transplant, 2016.
ELF’s collaboration with the European Respiratory Society (ERS) is unique. We bring together the ELF network of patients and advocates with the ERS network of clinicians and researchers in a partnership that benefits everyone.
This close collaboration means patient voices are not only heard but can actively shape respiratory research, care and policy. The patient perspective chapters in the ERS Monographs are just one small example of the many ways we work together to improve lung health across Europe.
By connecting with ELF, you can get involved in future projects, access valuable resources and join a growing, supportive community committed to making a real difference in lung health.
