Content Table
The Alpha-1 antitrypsin deficiency Patient Conference will take place online on 05 November 2024 at 10:00-16:00 CET.
The conference is for people living with Alpha-1 antitrypsin deficiency (also referred to as Alpha-1 or AATD) and their family members and carers. It is an opportunity to understand more about the disease and how to manage it. The event may also be useful to healthcare professionals and anyone with an interest in Alpha-1.
Key sessions will focus on:
Attendees will have an opportunity to ask the speakers questions during each session using the event Q&A box.
The conference will be held in English. A live transcription service will allow participants to generate captions in over 50 languages. The event will be recorded and made available on this page within 2 weeks of the event.
The full programme for the event will be published soon.
Marc Miravitlles, MD, FERS, is a senior researcher and a consultant in the Pneumology Department at the Vall d’Hebron University Hospital and the Vall d’Hebron Research Institute in Barcelona, Spain. He has served as chair of the Respiratory Infections Group of the European Respiratory Society (ERS) and guidelines director of the ERS. He has also acted as a consultant for the development of international guidelines of chronic obstructive pulmonary disease (COPD), including the American Thoracic Society (ATS)/ERS guidelines on exacerbations of COPD and the ERS statement on the management of respiratory disease in alpha-1 antitrypsin deficiency. He is currently a consultant to the Spanish Ministry of Health for the development of the National Strategy Against COPD. In addition, he has served as the coordinator of the Spanish National Guidelines for COPD since 2011. Dr Miravitlles is the author or coauthor of more than 600 peer-reviewed publications in the fields of COPD and alpha-1 antitrypsin deficiency.
Pavel Strnad is a full professor and leading physician at the University Hospital Aachen, Germany. Since 2008, he is heading his own research lab focusing on translational gastroenterology. In 2016, he was named one of the Rising Stars of the United European Gastroenterology. He is heading the European initiative for study of alpha1-antitrypsin deficiency-associated liver disease and is global PI on several AATD-related clinical trials. His interest include (but are not limited to) metabolic and rare liver disease, liver cirrhosis and complications. His clinical focus is on emerging drugs, end-stage liver disease and liver transplantation
Alice graduated from the University of Leicester and has done postgraduate training via the Universities of Dundee and Birmingham, and Ashridge-Hult business school, completing a PhD focussed on COPD and alpha 1 antitrypsin deficiency (AATD) and postgraduate qualifications in medical education, leadership and quality improvement (QI). She is a professor in respiratory medicine at University of Birmingham and works as a consultant in respiratory medicine. She has published widely in COPD and AATD, and has ongoing research projects, mainly clinical trials and observational clinical studies, in AATD and COPD funded by the NIHR and others. She was on NIHR research prioritisation and NICE health technology appraisal committees until recently.
The conference will be held in English. We will provide a live transcription service to allow participants to generate captions in over 50 languages.
ELF does not charge for its events and materials. We want to make sure they are available to anybody who wishes to join or use them. To ensure we can keep doing this we ask that those who can afford to pay to make a donation. We are grateful to everyone who supports us in this way and helps lung health patients to understand more about their condition and have their voices heard.