This event has ended. Recordings of the event are available to watch below.
This event took place on Friday 30 June at 16:00-17:00 CEST/15:00-16:00 BST.
In the run up to World Bronchiectasis Day (1 July), we wanted to raise awareness about bronchiectasis around the world. This webinar was aimed at people with bronchiectasis and their family members/caregivers. However, anyone was welcome to join who would like to understand more about this condition.
You could submit your questions to a panel of bronchiectasis experts after registering for this free event. Read more about the panel and contributors below.
The experts answered as many of these questions as they could during the 1-hour webinar. Attendees were also able to ask questions via the chat during the webinar and have them answered by our experts.
The webinar will take place in English.
There will be a live automated transcription service available for attendees to follow the conference in the following languages: Arabic, Bengali, Chinese (Simplified), Chinese (Traditional), Czech, Dutch, English, French, German, Hebrew, Hindi, Indonesian (Bahasa), Italian, Japanese, Korean, Polish, Portuguese, Romanian, Russian, Spanish, Swedish, Tagalog, Tamil, Thai, Turkish, Vietnamese.
Further details will be sent to all those who register.
Barbara Crossley has been a member of the ELF Bronchiectasis Patient Advisory Group since 2017.
She has helped organise four Bronchiectasis Patient Conferences, collaborated with EMBARC researchers on ongoing projects, helped formulate patient surveys and patient-friendly information for the European Lung Foundation website, including a patient self-care guide.
She has lifelong bronchiectasis and is a writer who lives in the Peak District in Derbyshire, UK.
Member of the ELF Bronchiectasis Patient Advisory Group
Kjeld Hansen was the Chair of the European Lung Foundation 2020-23. He is an experienced patient advocate and has been involved in a wide range of research and advocacy activities to improve care for respiratory patients. Kjeld has moderate to severe asthma. In his professional life, he works at Kristiania University College Oslo, Norway and is also associated with Copenhagen Business School in Fredericksburg, Denmark.
Dr Josje Altenburg works as a pulmonologist at the Amsterdam University Medical Centres, where she is involved in clinical care of patients with Cystic Fibrosis, Primary Ciliary Dyskinesia, bronchiectasis and other infectious lung diseases.
She participates in national and international guideline development, national education of physicians, and in international working groups in bronchiectasis, education of physicians, and in international working groups in bronchiectasis.
Natalie Lorent is a consultant Pulmonologist and Clinical Infectiologist working at the Respiratory Medicine department of the University Hospitals Leuven, and clinical lecturer at the Katholieke Universiteit Leuven, Belgium.
Her clinical and research interests focus on respiratory infections (particularly mycobacterial infections), bronchiectasis and cystic fibrosis.
She has a passion for translating science to clinical practice to improve outcome for patients.
Amelia Shoemark is a Researcher at the University of Dundee. Her research focuses on bronchiectasis with a specialist interest is in the role of cilia in the lungs. She is part of the EMBARC2 committee where she leads the EMBARC BRIDGE project. An international project to understand different types of infection and inflammation in the lungs in bronchiectasis in order to try to target the right treatments to the right people.
Amelia conducted her PhD at Imperial College London and trained as a clinical scientist at the Royal Brompton Hospital in London where she continues to lead the diagnostic laboratories for the inherited disorder Primary Ciliary Dyskinesia.
Michal Shteinberg received her MD and a PhD in biochemistry from the Technion-Israel institute of technology. She trained in internal medicine and pulmonology, with a Fellowship in bronchiectasis and adult CF.
Prof. Shteinberg is heading the bronchiectasis and adult CF unit in the Pulmonology institute and CF center, Carmel medical center, Haifa, Israel.
She is a Clinical Associate Professor in the Faculty of medicine at the Technion, Israel Institute of Technology, and a member of the executive committee of the Israeli Society for Tuberculosis and mycobacterial diseases.
Her main research interests are bronchiectasis and its overlap with other airway diseases, mainly rhinosinusitis, and connective tissue diseases, as well as adult CF.
Prof. Shteinberg is a member of EMBARC management and heading Patient Activities Work package.
Dr Arietta Spinou is a Lecturer in Cardiorespiratory Physiotherapy Practice and Research at King’s College London, UK. She is a Specialist Respiratory Physiotherapist and has extensive research experience, with a special interest in bronchiectasis.
As part of her PhD work, Dr Spinou developed the Bronchiectasis Health Questionnaire, and for the first time objectively assessed cough frequency in a group of people with bronchiectasis.
Currently, Dr Spinou co-leads the ERS Task Force for the airway clearance techniques in bronchiectasis.
This event was co-developed with EMBARC, a pan-European network committed to promoting clinical research and education in bronchiectasis and the ELF Bronchiectasis Patient Advisory Group.
This webinar takes place in the run-up to World Bronchiectasis Day on 1 July.
Find out more about how global partners are raising awareness of bronchiectasis and for other upcoming events.
ELF does not charge for its events and materials. We want to make sure they are available to anybody who wishes to join or use them. To ensure we can keep doing this we ask that those who can afford to pay to make a donation.
We are grateful to everyone who supports us in this way and helps lung health patients to understand more about their condition and have their voices heard.
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