MEP Lung Health Group: Improving lung health through the future European Health Data Space

Time: 14:00-15:15 CET

Overview

This event is hosted by the MEP Lung Health Group – an informal platform for policymakers, health professionals and patients to identify the potential EU policy measures aimed at improving lung health. The Group’s secretariat is supported by The European Respiratory Society and European Lung Foundation.

This event will mark the launch of the European Lung Health Group (ELHG) policy brief on the future European Health Data Space (EHDS).  The ELHG is an informal group of patient groups and healthcare professionals, with 179 member associations from across Europe, and its Breathe Vision 2030 outlines the changes that lung patients want to see across awareness, prevention, care, research and the impact of COVID-19. This new policy brief will expand the group’s Breathe Vision 2030 on the topic of digital health.

Aim of the event

Digital health experts, policy makers, healthcare professionals, and patient representatives will come together to discuss how the expectations from the respiratory community could be reflected in the future European Health Data Space (EHDS) legislation, and its huge potential to improve prevention, diagnosis, management and quality of life of people living with lung diseases.

Chairs

• MEP Manuel Pizarro (S&D – Portugal)
• MEP Sara Cerdas (S&D – Portugal)

Speakers

• Ioana-Maria Gligor, European Commission (DG SANTE) – tbc
• Arzu Yorgancıoğlu, European Respiratory Society (ERS)
• Armando Ruiz, European Federation of Allergy and Airways Diseases Patients’ Associations (EFA)
• Francesco Buonarroti, Digital Europe – tbc
• Brice Van Eeckhout, Comunicare Solutions SA, and DRAGON (IMI Project)

Format

• Roundtable discussion
• Audience Q&A

Topics

The roundtable discussion will look to answer the following questions:

• The future of EHDS to improve lung health prevention and care – dream or reality?
• Digital health technology to serve respiratory outcomes – a change in paradigm?
• Digitalisation to enable self-management – what role for patients?

Find out more about the MEP Lung Health Group or become a supporter